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Results: 8
Number of items: 8
  • Open Access
    Cervera de la Cruz, P., & Shabani, M. (2025). Conceptualizing fairness in the secondary use of health data for research: A scoping review. Accountability in Research, 32(3), 233-262. https://doi.org/10.1080/08989621.2023.2271394
  • Open Access
    Bernier, A., Molnár-Gábor, F., Knoppers, B. M., Borry, P., Cesar, P. M. D. G., Devriendt, T., Goisauf, M., Murtagh, M., Nicolás Jiménez, P., Recuero, M., Rial-Sebbag, E., Shabani, M., Wilson, R. C., Zaccagnini, D., & Maxwell, L. (2024). Reconciling the biomedical data commons and the GDPR: three lessons from the EUCAN ELSI collaboratory. European Journal of Human Genetics, 32(1), 69-76. https://doi.org/10.1038/s41431-023-01403-y
  • Open Access
    Pastorino, R., Pezzullo, A. M., Osti, T., Adany, R., Borry, P., Barnhoorn, F., Fadil, E., Kroese, M., Metspalu, A., Perez-Gomez, B., Perola, M., Quaggia, D., Scollen, S., Shabani, M., Swartling Peterson, S., van El, C., Vicente, A., & Boccia, S. (2024). The PROPHET project paves the way for personalized prevention in the future healthcare. European journal of cancer prevention, 33(5), 387-389. https://doi.org/10.1097/CEJ.0000000000000873
  • Open Access
    McKibbin, K. J., Popejoy, A. B., & Shabani, M. (2024). Reconciling diversity in health and genomic data collection with the regulation of AI in clinical genomics. Genetics in Medicine, 26(7), Article 101127. https://doi.org/10.1016/j.gim.2024.101127
  • Open Access
    Staunton, C., Shabani, M., Mascalzoni, D., Mežinska, S., & Slokenberga, S. (2024). Ethical and social reflections on the proposed European Health Data Space. European Journal of Human Genetics, 32(5), 498–505. https://doi.org/10.1038/s41431-024-01543-9
  • Open Access
    McKibbin, K., & Shabani, M. (2023). Genomic Data as a National Strategic Resource: Implications for the Genomic Commons and International Data Sharing for Biomedical Research and Innovation. The Journal of law, medicine & ethics, 51(2), 301-313. https://doi.org/10.1017/jme.2023.77
  • Open Access
    Marelli, L., Stevens, M., Sharon, T., Van Hoyweghen, I., Boeckhout, M., Colussi, I., Degelsegger-Márquez, A., El-Sayed, S., Hoeyer, K., van Kessel, R., Krekora Zając, D., Matei, M., Roda, S., Prainsack, B., Schlünder, I., Shabani, M., & Southerington, T. (2023). The European health data space: Too big to succeed? Health Policy, 135, Article 104861. https://doi.org/10.1016/j.healthpol.2023.104861
  • Open Access
    Lang, M., McKibbin, K., Shabani, M., Borry, P., Gautrais, V., Verbeke, K., & Zawati, M. H. (2023). Crowdsourcing smartphone data for biomedical research: Ethical and legal questions. Digital Health, 9. https://doi.org/10.1177/20552076231204428
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