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Zoekopdracht: faculteit: "FMG" en publicatiejaar: "2011"

AuteursE.E. Hartmann, F.J. Oort, D.C. Aronson, M.A. Sprangers
TitelQuality of life and disease-specific functioning of patients with anorectal malformations or Hirschsprung's disease: a review
TijdschriftArchives of disease in childhood
Jaargang96
Jaar2011
Nummer4
Pagina's398-406
ISSN00039888
FaculteitFaculteit der Maatschappij- en Gedragswetenschappen
AMC-UvA
Instituut/afd.FMG: Research Institute Child Development and Education (CDE)
SamenvattingThe objective of this review was to examine disease-specific functioning (ie, faecal functioning and disease-related psychosocial problems) and quality of life (QoL)in patients with anorectal malformations (ARMs) or Hirschsprung's disease across different developmental stages. A search on PubMed yielded 22 eligible studies which were analysed. Patients with ARM or Hirschsprung's disease report slightly more QoL problems than comparison groups. As compared with adolescents, children reported better QoL but worse disease-specific functioning. Relationships between disease-specific functioning and QoL remain unclear. Therefore, to disentangle the complex relationship between the faecal functioning of these patients and their QoL through childhood, adolescence and adulthood, longitudinal studies should examine disease-specific functioning with validated QoL questionnaires that include age-specific versions.
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